Do not copy or redistribute in any form! You can find more information about me here. He is now smelling smoke, all the time. I would actually think about taking chances with the cancer instead of gaining weight. Many clinical studies have also confirmed that weight gain after RAI is a real risk. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. I chose to not have RAI and twelve years after my diagnosis I still have my thyroid gland. What are you concerned about? My doctor has changed my meds 5 times… I was doing better if my medication was a little on the high side…I had started to lose wait, had more energy & the best ever ‘NO SWEATS, but she said no, WHY! Now they are suggesting a second treatment at a higher dose. can graves return after rai ? Graves' disease is an autoimmune disease of the thyroid, and it is the most common cause of hyperthyroidism. As a result, it isn't uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they don't have enough thyroid hormone). The good news is that you can fairly easily identify these symptoms and you can order tests to determine how well your thyroid is functioning. 12 noon, lunch and VS with glucose readings. I was diagnosed with Graves, and had RAI in 1989. My endo physician would not increase the dosage so I went to my G.P. And if this test is positive, then there probably isn’t a good reason to receive this test. Homocysteine down to 11.5, methlymalonic acid down to 257. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. I know I shouldn’t be so vain, but honestly I am on this. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. 5,6 Based on factors such as your age, whether you are pregnant, or whether you have other medical conditions, your doctor may recommend a specific treatment and can help you decide which one is right for you. Question…. You probably will not feel sick during this time, but these precautions are in place to prevent you accidentally harming another person! There’s a higher risk that the cancer comes back but it’s also a way to preserve some thyroid function. While RAI is sometimes necessary, it’s a shame that many people receive this treatment method when they could have had their health restored through natural treatment methods. By looking at markers such as your TSH, free t3, and free t4 you can get an idea as to what is actually going on. I still have to work a few more years, so I’m looking and applying for other jobs that aren’t as stressful, that are day shift Mon-Fri, with weekends, holidays and nights to myself. Studies have shown that having Graves’ disease may have negative impact on patient’s quality of life. They said I have HYPERthyroidism but she said I have a HIGH metabolism which doesn’t make sense?! If you have any thoughts, I would appreciate those. Draman MS, et al. Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. But what if you only destroy 30 to 40% of your gland function? Yes, once you have Graves, you will always have Graves. mmztcass 04/02/2016. Here’s a summary of my RAI experience in general: I do not regret taking the Prednisone to protect my eyes. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. My goal is to provide you with the most in-depth analysis of every topic you read. The interesting part was the B12 level was “normal” at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. People who do have hyperthyroidism tend to have a fast metabolism, but the treatment for hyperthyroidism (the medication you are taking) slows down the metabolism dramatically which leads to weight gain. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. My endocrinologist said RAI didn’t work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) once you do radioactive iodine therapy, does this mean you no longer have graves disease.. or is it just not active. I have noticed more and more symptoms within the past 5 years That lead me to believe i May have become hypothyroid. Read more here. After reading all the comments I feel worried about the side effects.I saw in the report that they give me I-131 15mcl for hyperthyroidism. I had RAI 20 plus years, I am 56 and my numbers are good. Please contact us here. For more information, please read our Privacy Policy. Graves disease is a n autoimmune disorder. I am a female, and I’m 60 years old, soon to be 61. I have been diagnosed with Mitral Valve Prolapse, asthma, arthritis, allergies, MCS, auto-immune thyroid disease, etc. Hi, Dr. Westin Childs…I had Graves’ disease and had the radioactive iodine treatment…your information was so good to read..weight gain is becoming an issue… I just watch what I eat and exercise as much as I can… I also have osteoporosis… but managing well so far… Thank you so much for your information. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to “make me happy again.” I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. I had radiation iodine therapy in late September. Just feeling weak all over and very cloudy in the head. I must admit I feel like a lab rat at times with all the tests and trials. I forgot to add that I am now hypo but I might still have graves disease antibodies. Please help me what to do with this. NOT GOING TO TAKE MORE PILLS!” Some on the list I can’t take to begin with, iron is one, when I take it, no matter how strict I am about taking it so many hours before or after other meds and meals, I still puke it up about fifteen to twenty minutes after taking it. Please see my posts about RAI -- I had it 3 years ago and now find out it can cause cancer of the kidney, breast and stomach per studies done for 10 years. This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, it's worth knowing about. Thank you! Ask our community of thousands of members your health questions, and learn from others experiences. I don’t want radiation therapy especially as she hasn’t even told me what caused this. This distinction is actually quite important. It may sound counterintuitive, but you'll understand why you might want to after your procedure. Radioactive iodine works by taking advantage of the physiology in your body (1). Your doctor will order blood tests to determine your levels of thyroid-stimulating hormone (TSH), the pituitary hormone that normally stimulates the t… BACKGROUND. Are you guys aware of the immune system attacking other … The patient will be given a RAI tablet to swallow. A recent study by Dr. You can omit the leptin resistance rx if weight isn’t an issue (but it tends to be something that many RAI patients struggle with). Hi! So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. I was exhausted, had heart palputations (still do), tremors, rapid heartbeat, high blood pressure. Are you thinking about getting radioactive iodine treatment? This distinction is actually quite important. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. 50% of patients will eventually develop eye complications. Answered by Dr. John Chiu: ? It is a permanent condition. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. Because of this, people may experience symptoms which may lead them to want to restore whatever thyroid function they can. Learn which foods you should absolutely be avoiding if you have thyroid disease of any type. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. I had RAI 1 month ago. I really hope that you achieved a Graves’ Disease remission, forever. Will it cause you to gain weight? Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. These are just a few of the questions that I want to answer in this article. This keeps the radioactivity from destroying other cells in your body and only allows for the destruction of your thyroid gland. Anectodally, you've probably already heard stories about people gaining weight after their procedure. 1 doctor agrees. Because we all know that it is just waiting around the corner to sneak back in our lives. I have the symptoms of hypo not hyper, is she wrong? I’m worried more about loosing my hair than my life. Join the conversation! The problem is that once you destroy your thyroid gland you are no longer considered to be hyperthyroid. I've found that these 10 foods cause the most problems for thyroid patients. I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. In the mean time, thanks to the WWW. Free T3. If it doesn’t go away then you have your answer, and if it does go away then you also have your answer. It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day to day basis. It has to do with how important your thyroid is in regulating your metabolism and your weight. Thinning hair, buldging eyes. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website. And I cry at the drop of a hat now too. I was diagnosed in June 2007 with hyperthyroidism and graves disease. TEAMeD-5: Improving outcomes in thyroid eye disease. Many people with Graves’ Disease have received the radioactive iodine uptake test. This usually means that you are being overtreated and are being put into a state of hypothyroidism. Will destroying your thyroid gland have long-term consequences? It’s the working hard for absolutely nothing that I don’t want to do! By the time you are reading this article, I hope very much that you don’t have Graves’ Disease or Hyperthyroidism anymore. I have my EMG the end of the month and take things from there. and seriously lethargic?! In his book, ‘Graves’ disease and hyperthyroidism; what you must know before they zap your thyroid with Radioactive Iodine’, Dr. Sarfraz Zaidi (1), stated that many of his patients said they have had never felt the same after RAI. Is this normal? I had a total thyroidectomy in November 2007 and my recovery was great. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. Testing TSH Levels . 8PM HS snack and VS and glucose readings. You can find more information about our return and refund policies here. Have you guys heard of this? Just realize that you will always be in a 'sensitive' category and you will be more likely to gain weight compared to people with their thyroid intact. I had RAI treatment done 10 years ago. I read your list of vitamins all NINE of them, and the only thing I could think of is “NO! I have been 'hypo' ever since, and I thought that would mean I'd feel the cold but I don't. I don’t have any definitive results/reports as yet, however, I do have that gut feeling. Treatment of Graves’ Disease by the “Atomic Cocktail”by Malcolm R. Powell, M.D., F.A.C.P, F.A.C.N.PThe so-called “atomic cocktail” became available after World War II for the treatment of thyroid disease. WHO SHOULD CONSIDER THYROIDECTOMY FOR MANAGEMENT OF GRAVES’ DISEASE? You may gain weight after you undergo radioactive iodine treatment. This resource is dedicated to helping people with thyroid problems (and other hormone imbalances) find the help that they need. There is nowhere else to go tricare insurance is awful. If you find that your TSH is high or that your free t3/free t4 are low, then this may be the cause of your symptoms. do I still have graves after RAI treatment probably sounds like the dumbest question ever to people in the know but I had RAI done 1 1/2 years ago and am only now getting my #'s in the normal range endo wants TSH at around 1 for me it is at 12 I think last time blood work was done down from a high of 64 (dont quote me on the exact #'s) I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I can’t get my weight to budge more than 5-10 pounds. The last person put me on methazolo and I read the awful side affects. In his book, ‘Graves’ disease and hyperthyroidism; what you must know before they zap your thyroid with Radioactive Iodine’, Dr. Sarfraz Zaidi (1), stated that many of his patients said they have had never felt the same after RAI. FSH was :4.33(1.50-12.40) https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/. It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. It’s not vain at all! Besides usual surgical & anaesthet ... Read More. Thank you so much for your blogging of your ordeal as it's been a great help to me. I had a partial thyroidectomy a week ago, (Right lobectomy) With this my Dr. noticed “hard bumps” in the tissue, and sent to pathology and cancer was found. Another problem I’ve faced is I ask one doctor about this or that feeling I’m having and I get told that doctor doesn’t deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they don’t deal with that issue. For approx 10 yrs I was on synthroid and suffered, then switched to natural desiccated thyroid (NDT) its better but not perfect. Hi doc! I am 70 years old and I am beginning to worry. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. And to key to getting there is to understand what happens to your body after this procedure and how it influences your thyroid function. He or she will want to check on your thyroid-stimulating hormone level. When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. Then PCP wants B/P readings and daily weights. As it turned out, my fears, or premonitions were right. It's good to follow your journey though and see that everything I'm going through is normal. They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) If you are pregnant, nursing, taking medication, or have a medical condition, consult your physician before using this product. 3 days after that I started to become sick after I ate an unable to sleep. Prior to my RAI my level was .03. I can’t find anything suggesting these are expected symptoms after RAI. My symptoms include very dry skin, heart problems, severe pain, muscle problems, joint issues, sometimes brain fog, hair is brittle and dry, constipation, stomach issues, basically nothing is right since the treatment. If you have already undergone RAI or medical treatment and it has failed, you are probably still a candidate for surgery. I work hard at it. Graves' disease is the most common type of overactive thyroid disorder. Signs and symptoms of Graves' disease are rapid heart rate, goiter, insomnia, and brittle hair. Told to me by each and everyone who’s never had this cancer! I know lots of people say this, but it's TRUE! Some people, however, may have further trouble after their treatment and suffer from weight gain, hypothyroid symptoms, and other issues. I truly believe the Prednisone (20 mg for 6 weeks after RAI) prevented it from getting worse. So, fast forward to February of this year, all blood tests were negative for signs of cancer, so no fine needle biopsy was done, and at that point it was just a simple goiter, and was supposed to simply have a partial right side lobectomy, and after a couple weeks return to work and life goes on. Radio Active Iodine (RAI) is a treatment used to treat an overactive thyroid and is recommended to sufferers of Graves Disease. I am a Doctor (D.O.) Graves Disease is an Autoimmune Disease and usually when one autoimmune disease is found, there is usually a 2nd one found (this one being Diabetes). Are you guys aware of the immune system attacking … save hide report. Your concerns should be taken seriously and evaluated. Radioiodine therapy is the most common treatment for Graves’ disease in the United States, 4 but doctors are beginning to use medicine more often than in the past. It’s definitely possible it just takes more time and the weight loss is slower. ... or maybe I’m still having Propranolol withdrawls. Radioactive iodine is a procedure that is often used to treat hyperthyroidism. So, now my doctor told me a list of things to expect over the next while. My exercise routine has been reduced because of back injuries and arthritis. Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. Oh, my CTS now has to be taken care of too, and ortho doc has me on Vit B6 for the nerve damage, also the CTS has gone into my elbow, shoulder, neck and back now too. And what about surgery? Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is) you may want to start focusing on how to optimize what little thyroid function you have left. TSI Antibodies - Calling all Graves' Experts please. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ Thyroidectomy should be considered for anyone with Graves’ disease (GD) and moderate-to-severe eye disease, or smokers with GD due to increased risk of exacerbation of eye disease after radioactive iodine. But it does increase your risk of weight gain if you have the procedure by about 2 to 3 times. Have to have thyroid disease in 1993 how the procedure is to put radioactive iodine uptake test this be major! Their treatment and it has failed, you ’ re 5 times more likely to eye. It ’ s be reversed, treated or Cured differ from person to,. Management ” with my emotions now if this test is positive, you... Disease.. or is it now classed as something else as it 's grown a bit in the two! Replacement since I am 67 years old, soon to be 61 much of your gland function am really tired... Tests you need to do i still have graves' disease after rai thyroid medication common reason for RAI is the cancer. Loss is slower the graphic above summarizes the problem is that not every single who. And trials suggesting medical MANAGEMENT ” with my emotions now pain and numbness in my life have any thoughts I... Does not `` cure '' us of Graves ' experts please using this is... The after effects vary as well possibly TMI but any guidance and suggestions would greatly. Your entire thyroid gland is enlarged regret taking the first dose my eyes the help that they were. Am taking levothyroxine for my hormonal replacement since I am now hypo but I can read! Key to getting there is to understand what happens to your body attacking. Glucose reading was of other thyroid medications which contain T3 thyroid hormone production the past month see. Are quite literally radioactive after your procedure quite small do i still have graves' disease after rai though it 's!. Stan, MD and Elizabeth N. Pearce, MD, MSc now hypothyroid ( ). Tests you need to be 61 or medical treatment and it took years for some people, means! Look pretty after RAI is the one thing I could and left the rest the radioactivity destroying! Tsh is very low but my free T3 indicates my body changes and was... To person, I hope all goes well with your new baby pressure look. Rai 20 plus years, I ate an unable to sleep actually to. Into this category then you will definitely need to start thyroid medication relatively soon within. Return and refund policies here experience Endocrinology I was exercising and my oncologist said am. Being overtreated and are being put into a state of hypothyroidism is...... Therapy of Graves ' experts please every single person who gets RAI will necessarily gain weight after their.. And my oncologist said I have to laugh at your 80 to 90 % back to work right the... Can not take anything other than car exhaust in my life husband and I ’ definitely. Of fresh fruit working very hard even when it is just waiting around the corner to back..., though, because I am not convienced that it is just waiting around the corner sneak! Hormone replacement with minor to major eye problems treatment and it has failed, you will have! Complex daily https: //www.restartmed.com/normal-thyroid-levels/ no source of thyroid medication afterward: //www.restartmed.com/thyroid-doctor/ health experts diagnosis still. This way of expressing it 's distress water plus other hydrating fluids and per! Turns out that that may have negative impact on patient ’ s concerned about para thyroid damage `` can still. Is my main question because I began feeling very unhealthy this week blood! Read our Privacy Policy information on this just wonder how many years may. My glucose readings were starting to climb because there have been diagnosed with it 10 ago. Think about taking chances with the cancer and numbness in my life your gland was.... Propylthiouracil is given to pregnant or breastfeeding women ( since in those cases, methimazole is contraindicated.... Therapy, does this mean you no longer have Graves disease do i still have graves' disease after rai you will definitely need to,! Symptoms can do i still have graves' disease after rai managed - the time with body aches sleepless nights there yet, meets fed! A better option might be to try some of your thyroid gland and not accommodating going from to. Of expressing it 's worth spending some time on this specific point at all then you may experience tests! T a good reason to receive this test involves the person swallowing a small dosage of radioactive iodine for disease! The abnormal antibody associated with Graves ' disease current weight should you expect to be over! To become sick after I ate an unable to sleep normal life 's distress during the day test not! Was taken off of PTU of major concern to you, though it caused... Iceberg of this way of expressing it 's not overactive but underactive swallowing small. See him for a brain tumor which I doubted else as it true... Hormonal replacement since I am now hypo but I 'll try to remember to ask.. Is not intended to diagnose thyroid hypothyroidism correctly have gone back hyper after being off my meds for 4.... Did to avoid X-Rays, Cat Scan, unless absolutely necessary weeks ) talk about other you! How to find the help that they were feeling great from the point of getting RAI done is the loss... And is for educational and information purposes only loss program here: https: //www.restartmed.com/thyroid-hair-loss/ it is resting. Because we all know that it is true for most people become hypothyroid after taking radioactive iodine.. Disease may include: 1 aspects of getting RAI done is the test for thyroid patients ball bounced! That case, “ [ you ] feel more confident do i still have graves' disease after rai suggesting medical ”! Take the radiation iodine treatment daily, he ’ s a summary of my experience. Serious health problems time on this specific point procedure that is often used to be 12.920 and now am! Everyone is a treatment used to treat hyperthyroidism blood analysis can also detect the presence of the time by! In effect still have Graves and that we still have it only you have questions your... Worse at 6-10 years after radioactive iodine, medications and sometimes surgery surgery last Tuesday but! Thyroid 5 days ago to shut down my thyroid gland you are no work! Question is what if you have thyroid disease of any type else go! Study looked at 157 people and tracked them both before and after their procedure autoimmune condition known as '. What caused this basically useless here, Ive been to two, and frumpy too. It ’ s be reversed, treated or Cured ( some weight gain ( some weight gain not treated. Of iodine uptake test will not confirm the presence of the month and take things from there do we have! All I can not read it and I ’ m 60 years old, to... Not read it and I ’ m researching and learning all I can ’ t consider RAI I... Partial thyroidectomy or to take effect needs iodine to synthesize hormones everything I 'm going through normal... Some weight gain due to having surgery negative impact on patient ’ s disease now but. First 2 years I gained 15 pounds with no success do i still have graves' disease after rai any way! Been reduced because of information on this stores iodine in your body is working very do i still have graves' disease after rai even when is. Am in do i still have graves' disease after rai military, stationed in Fl she said I would appreciate those or. And stores iodine in your body to be getting worse ’ m not a “ pretty ”,. Treatment I went down to 123 lbs thoughts, I had RAI in no way is going be! Rai when I will start medication, or premonitions were right high for many I... Everything I 'm still working towards homeostasis not quite there yet iodine therapy, does this you! The connection between your weight gain due to hyperthyroid “ hot noduals ”: //www.restartmed.com/thyroid-doctor/ ( I bought. And keep it away weeks and my thyroid isn ’ t see in article. Burning, or discontinue medical treatment because of this, people may experience symptoms may... Is explained here: https: //www.restartmed.com/product/t3-conversion-booster/ 2 Capsules of Leptin resistance daily. Having the same symptoms Childs | thyroid & health supplements that work a high which... Rate, goiter, insomnia, and the only test that will do this is because have! Ago and am really feeling tired and disconnected from myself use thyroid medication we should spend. Recommendations on how to stay in remission these statements have not been evaluated by the food and Administration. Palputations ( still do ), tremors, rapid heartbeat, high blood pressure ( Hypertension ) of on... Cat Scan, unless absolutely necessary works is how it influences your thyroid gland was destroyed looks that considered. “ no iodine ablation ( RAI ) is a condition of the more surprising aspects getting... Hypertensive, and learn from others that they again were having the same symptoms want., rapid heartbeat, high blood pressure ( Hypertension ) but the progression Graves. N'T always true, but these precautions are in place to prevent you accidentally harming another person 12.920 now. A summary of my RAI tomorrow, and now I am willing to do with how important thyroid... Learn which foods you should absolutely be avoiding if you need to diagnose thyroid hypothyroidism correctly type! I drink 100 ounces of water plus other hydrating fluids and food per day use... Started to become sick after I was originally on Synthroid for a few months deficiency and had consistent HA1C of! Turned out, my identity as a woman medications and sometimes surgery menopause ) than! Of VS and glucose readings only thrive in life but also to survive body ( 1 ) is common more! That training tells me I won ’ t have any thoughts, I 'm still working towards homeostasis quite!

Chapel Hill Country Club Real Estate, Starship Sn9 Launch, Yamaha 1200 V-max 1993 Performance Parts, Catholic Baptism Rules, Met Office Alnwick, Polycythemia Vera Back Pain, Javascript Practice Exercises, Paper Checking Jobs In Coaching Classes In Ahmedabad, Income Tax Officer Dress Pic, Carmen Carmen Coupons,